Following the surgery in June, Dr. Carlo Efisio Marras, director of neurosurgery of the Bambino Gesù hospital told CNA that the twins have a high chance of living normal lives after undergoing the 18 hour operation which involved more than 30 medical staff.
The twins, Ervina and Prefina, were born on June 29, 2018 in a village about 60 miles outside Bangui, the capital of the Central African Republic. They were joined together with “one of the rarest and most complex forms of cranial and cerebral fusion,” known as total posterior craniopagus, according to the Bambino Gesu hospital.
Mariella Enoc, president of the Bambino Gesù, met the twins in July 2018, during a visit to Bangui, where the sisters had been transferred after their birth. Enoc was helping to oversee the expansion of pediatric services in the country, which is one of the world’s poorest, in response to an appeal from Pope Francis. She decided to bring the girls to Rome for surgery.
A multidisciplinary team, including neurosurgeons, anesthesiologists, and plastic surgeons, prepared for more than a year for the operation to separate the twins. The hospital’s ethics committee contributed to a plan ensuring that the girls would have the same quality of life.
The hospital said the twins were joined via the back of the head, including the nape, sharing both skin and cranial bones. But the greatest challenge for doctors was that they were joined at a deeper level, sharing membranes inside the skull as well as the venous system, through which blood used by the brain is transported back to the heart.
The separation took place in three stages. In the first, in May 2019, neurosurgeons started to separate and rebuild the membranes and venous systems.
The second, a month later, focused on the confluence of sinuses in the brain. The hospital said it was a critical phase of the treatment as “the operating space is a few millimeters.”
The two operations prepared the girls for the third and final phase of complete separation on June 5.
“From a neurological standpoint, the two little girls are doing very well and have excellent prognosis for normal lives in the future," Marras said.
Courtney Mares is a Rome Correspondent for Catholic News Agency. A graduate of Harvard University, she has reported from news bureaus on three continents and was awarded the Gardner Fellowship for her work with North Korean refugees.
